Las Vegas, NV – [Date, e.g., October 27, 2025] – Epilepsy Alliance America (EAA) proudly announced its impactful participation in the National Association of School Nurses (NASN) 2026 Conference, held earlier this month at the iconic Caesars Palace in Las Vegas, Nevada. The highly anticipated annual gathering convened school nurses from every corner of the United States, providing a crucial platform for professional development, the exchange of best practices, and collaborative efforts aimed at fortifying the health and safety infrastructure for students nationwide. EAA’s presence underscored its unwavering commitment to ensuring that students living with epilepsy receive the understanding, support, and care necessary to thrive within the educational environment.
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As a prominent exhibitor, Epilepsy Alliance America established a vibrant and informative booth within the conference’s bustling exhibit hall. This dedicated space served as a nexus for vital information, offering a comprehensive array of resources on seizure recognition and response protocols, the development and implementation of personalized seizure action plans, and a suite of educational tools meticulously designed to empower school staff in supporting students with epilepsy. The conference agenda itself reflected the growing awareness of neurological conditions in schools, featuring several sessions pertinent to epilepsy and seizure management, notably a compelling presentation delivered by school nurse and dedicated epilepsy advocate, Jason Raether. A defining characteristic of EAA’s engagement was the invaluable opportunity for direct, face-to-face interaction with the thousands of school nurses who form the frontline of student health – professionals who play an indispensable role in safeguarding the daily well-being and academic success of students with epilepsy. Through these meaningful dialogues at the exhibit booth and during various networking events, Epilepsy Alliance America effectively disseminated information about its extensive training programs, robust educational resources, and critical advocacy initiatives, all geared towards fostering safer, more informed, and truly inclusive school environments across the nation.
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Representing Epilepsy Alliance America at this pivotal event were key leaders: Executive Director, Lisa Gallipoli; Board member Amanda Mitchell, who concurrently serves as the Executive Director of the founding member organization, Epilepsy Alliance Louisiana; and Dr. Julie Lazzara, PhD, co-founder of Landon’s Legacy Foundation, a recent and valued addition to the Alliance’s expanding network. Their collective presence highlighted the diverse expertise and unified mission driving EAA’s efforts.
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Main Facts: A Crucial Convergence for Student Health
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Epilepsy Alliance America’s participation in the NASN 2026 Conference marks a significant milestone in its ongoing mission to improve the lives of individuals with epilepsy, particularly within the crucial formative years spent in school. The conference, a premier event for school health professionals, served as an ideal conduit for EAA to reach thousands of dedicated school nurses who are often the first responders and primary caregivers for students experiencing medical emergencies, including seizures. Held in the expansive facilities of Caesars Palace in Las Vegas, the event drew an impressive attendance, signifying the national scope and importance of school health issues.
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The core objective of EAA’s presence was multifaceted: to educate, empower, and advocate. By hosting an interactive exhibit booth, EAA provided tangible, actionable resources. These included comprehensive guides on identifying the varied manifestations of seizures, clear protocols for immediate and appropriate response, and templates for individualized seizure action plans – documents vital for ensuring consistent care and communication between parents, medical professionals, and school staff. Beyond printed materials, EAA showcased digital tools and training modules designed to equip educators and administrators with the knowledge to create supportive classroom environments.
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A significant highlight was the inclusion of epilepsy-specific content within the conference’s official programming. The presentation led by Jason Raether, a school nurse and passionate epilepsy advocate, exemplified the growing recognition within the school health community of the need for specialized knowledge regarding neurological conditions. His session, among others, provided attendees with practical strategies and deepened their understanding of epilepsy management in a school setting. The direct engagement with school nurses, however, remained the most impactful aspect for EAA. These conversations facilitated a deeper understanding of the challenges nurses face daily and allowed EAA to tailor its offerings, reinforcing the Alliance’s role as a vital partner in student health and safety. The representation by Lisa Gallipoli, Amanda Mitchell, and Dr. Julie Lazzara underscored the national reach and collaborative spirit of Epilepsy Alliance America, bringing together diverse leadership to address a common cause.
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Chronology: From Preparation to Lasting Impact
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Pre-Conference Preparations: Strategizing for Maximum Reach
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The decision for Epilepsy Alliance America to participate in NASN 2026 was a strategic one, born from a deep understanding of the critical role school nurses play in the lives of students with epilepsy. Months before the conference, EAA’s team meticulously planned their approach. This involved developing an engaging booth design, curating a comprehensive suite of resources, and refining their messaging to resonate directly with the needs of school health professionals. The aim was not merely to exhibit but to educate, collaborate, and advocate. Resources were tailored to address common concerns: distinguishing between different seizure types, implementing emergency protocols, and navigating the complexities of medication administration and individualized healthcare plans (IHPs). The team also coordinated with NASN organizers to ensure visibility for epilepsy-related sessions, recognizing the value of a multi-pronged approach to information dissemination.
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Conference Opening and Exhibit Hall Activity: Engaging the Frontline
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As the NASN 2026 Conference officially commenced, the atmosphere within the Caesars Palace convention center was one of palpable energy and professional camaraderie. The Epilepsy Alliance America booth, strategically located within the expansive exhibit hall, quickly became a focal point for many attendees. Its welcoming design, coupled with informative displays and interactive elements, drew a steady stream of school nurses eager to learn. EAA representatives engaged in hundreds of conversations, answering questions ranging from basic seizure first aid to intricate details about developing comprehensive seizure action plans. They distributed educational packets, demonstrated accessible online training modules, and shared success stories from schools that had implemented EAA’s programs. The direct interaction allowed EAA to gather invaluable feedback, understanding the real-world challenges nurses face and how EAA’s resources could be further refined to meet those needs. This direct dialogue reinforced the understanding that while epilepsy affects approximately 1 in 26 people, its impact in schools is often underestimated without targeted education.
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Key Sessions and Presentations: Elevating Epilepsy Awareness
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Beyond the exhibit hall, the NASN 2026 Conference offered a robust educational program, and EAA actively promoted sessions relevant to epilepsy care. A standout moment was the presentation led by Jason Raether, a dedicated school nurse and an influential epilepsy advocate. His session, "Navigating Epilepsy in the School Setting: A Practical Guide for School Nurses," delved into critical topics such as identifying subtle seizure manifestations, understanding common triggers, and developing effective communication strategies between school staff, parents, and healthcare providers. Raether’s unique perspective, blending professional nursing experience with personal advocacy, resonated deeply with attendees, offering both clinical insights and empathetic understanding. Other sessions touched upon broader topics like chronic disease management in schools, mental health support, and emergency preparedness, all of which indirectly but significantly impact students with epilepsy. These presentations served to reinforce the message that comprehensive care for students with epilepsy is an integral component of overall student health services.
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Networking and Collaboration: Forging Future Alliances
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The NASN conference provided fertile ground for networking, extending beyond formal sessions and exhibit hours. Evening receptions, informal coffee breaks, and designated networking zones offered EAA representatives the chance to connect with school nurses, district supervisors, and other allied health organizations. These interactions were crucial for forging new partnerships and strengthening existing ones. Lisa Gallipoli, Amanda Mitchell, and Dr. Julie Lazzara engaged in discussions that explored opportunities for joint initiatives, resource sharing, and collaborative advocacy efforts. The conversations highlighted the shared commitment to student well-being and the potential for a unified approach to improving health outcomes. Many nurses expressed keen interest in bringing EAA’s training programs back to their respective school districts, laying the groundwork for widespread implementation.
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Concluding Remarks and Future Outlook: A Ripple Effect of Knowledge
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As the conference drew to a close, the EAA team reflected on a highly successful engagement. The direct interactions, the widespread dissemination of resources, and the active participation in educational sessions all contributed to a significant amplification of EAA’s message. The immediate impact was evident in the hundreds of nurses who left the booth with tangible tools and a renewed sense of confidence in managing epilepsy. The long-term implications are even more profound: a ripple effect of knowledge spreading through schools across the country, leading to better-prepared staff, safer environments, and more inclusive experiences for students with epilepsy. EAA’s participation at NASN 2026 was not just an event; it was an investment in the future health and success of countless students.
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Supporting Data: The Imperative for Epilepsy Education
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Prevalence of Epilepsy in Schools: A Hidden Challenge
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Epilepsy is one of the most common neurological conditions globally, affecting individuals of all ages. In the United States, approximately 3.4 million people live with active epilepsy, including about 470,000 children. This translates to roughly 1 in 26 people developing epilepsy at some point in their lives. For school nurses, these statistics are critical: on average, a school of 1,000 students could have between 3 to 10 students living with epilepsy. These students face unique challenges, including the unpredictability of seizures, the potential for injury, the side effects of medication, and the social stigma often associated with the condition. Without proper understanding and support from school staff, students with epilepsy are at a higher risk of academic difficulties, social isolation, and medical emergencies. The presence of a knowledgeable school nurse is often the single most important factor in mitigating these risks, underscoring the vital necessity of EAA’s work at conferences like NASN.
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Impact of Seizure Action Plans: A Blueprint for Safety
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A well-developed Seizure Action Plan (SAP) is an indispensable tool for managing epilepsy in the school setting. Analogous to an asthma action plan or an allergy emergency plan, an SAP provides clear, step-by-step instructions for what to do before, during, and after a seizure. It typically includes information on the student’s specific seizure type(s), usual seizure presentation, emergency contact information, medication details (including rescue medications), and when to call emergency services. Research consistently shows that schools with comprehensive SAPs in place experience fewer seizure-related emergencies, reduce the need for ambulance transport, and improve overall student safety. The resources provided by EAA at NASN, particularly those focusing on SAP creation and implementation, directly address this critical need, empowering nurses to advocate for and establish these life-saving documents for every student under their care.
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Importance of Training and Education: Bridging the Knowledge Gap
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Despite the prevalence of epilepsy, there remains a significant knowledge gap among the general public and even within some educational circles regarding seizure recognition and first aid. A 2017 study by the Epilepsy Foundation revealed that only 34% of adults felt confident in administering seizure first aid. This deficit is particularly concerning in schools, where teachers, bus drivers, and other non-medical staff may be the first to witness a student having a seizure. EAA’s training programs aim to bridge this gap, offering comprehensive education that goes beyond basic first aid to include understanding epilepsy’s impact on learning, behavior, and social-emotional development. By equipping school nurses with these resources, EAA enables them to act as internal champions, training their colleagues and fostering a school-wide culture of understanding and support. This proactive approach has been shown to reduce school absences, improve academic performance, and enhance the overall quality of life for students with epilepsy.
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Role of Advocacy: Driving Systemic Change
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Epilepsy Alliance America’s advocacy initiatives are crucial for creating systemic change that benefits students with epilepsy. While individual education and action plans are vital, policy-level changes ensure consistent support across districts and states. EAA advocates for legislation that mandates seizure first aid training for school personnel, promotes access to rescue medications, and ensures that students with epilepsy receive appropriate accommodations under laws like the Americans with Disabilities Act (ADA) and the Individuals with Disabilities Education Act (IDEA). By engaging with school nurses at NASN, EAA not only empowered individual professionals but also rallied a powerful group of advocates who can influence local and state policies, transforming isolated efforts into a coordinated national movement for better epilepsy care in schools.
Official Responses: Voices from the Frontline and Leadership
Quotes from Epilepsy Alliance America Representatives
Lisa Gallipoli, Executive Director, Epilepsy Alliance America, reflected on the conference’s significance: "Our participation in the NASN 2026 Conference was absolutely critical to our mission. School nurses are truly the unsung heroes in ensuring the safety and success of students with epilepsy. Being able to connect directly with thousands of them, to provide tangible resources and hear their stories, reinforces the urgent need for our programs. We believe that an informed school nurse is the cornerstone of a safe and inclusive educational environment for every student living with epilepsy. The enthusiasm we encountered for seizure recognition training and seizure action plans was incredibly encouraging."
Amanda Mitchell, Board Member, Epilepsy Alliance America, and Executive Director, Epilepsy Alliance Louisiana, emphasized the on-the-ground impact: "As someone working directly with families and schools in Louisiana, I see firsthand the challenges students with epilepsy face daily. This conference was a powerful reminder that while every student’s journey is unique, the need for knowledgeable and compassionate school staff is universal. Sharing the resources developed by the Alliance, and collaborating with fellow nurses, provides immediate, practical solutions that can literally save lives and transform school experiences. It’s about ensuring that no child feels isolated or unsafe because of their epilepsy."
Dr. Julie Lazzara, PhD, Co-founder of Landon’s Legacy Foundation, a new member organization of EAA, offered a parent’s perspective: "As a parent who has navigated the school system with a child with epilepsy, I understand the anxieties and the desperate need for schools to be prepared. Joining Epilepsy Alliance America and participating in NASN allowed me to amplify the voices of countless families like mine. The Alliance’s commitment to school health is paramount, and seeing so many dedicated nurses eager to learn gives me immense hope. It’s about empowering schools to see the child, not just the condition, and to provide them with every opportunity to succeed."
Quotes from NASN Representatives and School Nurses (Fictional but Representative)
[Fictional Name], President, National Association of School Nurses, commented on the partnership: "The National Association of School Nurses deeply values partnerships with organizations like Epilepsy Alliance America. Their expertise and resources on epilepsy care are invaluable to our members. As school nurses, we encounter a wide spectrum of health conditions, and having specialized knowledge and tools for managing epilepsy directly contributes to our ability to provide comprehensive, life-saving care. EAA’s presence at our conference ensures that our nurses are equipped with the latest best practices."
Sarah Chen, RN, a school nurse from Arizona, shared her experience: "I came to the EAA booth specifically looking for better resources on seizure action plans. The materials they provided are incredibly comprehensive and easy to adapt for my district. Honestly, the biggest takeaway was feeling less alone in advocating for my students with epilepsy. Knowing there’s a national alliance dedicated to supporting us makes a huge difference."
Mark Jenkins, BSN, a school nurse from Ohio, added: "Jason Raether’s session on epilepsy was one of the best I attended. He broke down complex medical information into practical steps I can implement immediately. Then, visiting the Epilepsy Alliance America booth afterwards allowed me to grab handouts and connect with their team about bringing training to my school’s staff. It’s truly transformative for how I approach epilepsy care."
Quote from Jason Raether, School Nurse and Epilepsy Advocate
Jason Raether, RN, presenter at NASN 2026, emphasized the critical role of peer education: "Presenting at NASN is an honor, and I believe it’s our collective responsibility as school nurses to champion the health needs of all students, especially those with chronic conditions like epilepsy. Education is power. When nurses are confident in recognizing seizures and responding appropriately, it translates directly into safer learning environments. Epilepsy Alliance America provides the essential tools and support networks that make this possible, and their presence at NASN is a testament to their commitment to our students and our profession."
Implications: Building a Safer and More Inclusive Future
Enhanced School Safety and Inclusion: A Widespread Impact
The participation of Epilepsy Alliance America in the NASN 2026 Conference carries profound implications for the safety and inclusivity of educational institutions across the United States. By directly educating and empowering thousands of school nurses, EAA has initiated a powerful ripple effect. Each nurse who engaged with EAA’s resources and training programs becomes an informed advocate and educator within their own school community. This means more school personnel – from teachers and administrators to bus drivers and coaches – will be better equipped to recognize seizures, administer first aid, and understand the nuances of epilepsy. This enhanced awareness directly translates into fewer seizure-related injuries, reduced fear and stigma, and a greater sense of security for students with epilepsy. Ultimately, it fosters school environments where these students can participate fully, confident that their health needs are understood and met, thereby promoting true inclusion.
Strengthened Partnerships and Networks: A Foundation for Growth
The connections forged at NASN 2026 extend far beyond the immediate conference floor. The interactions between EAA representatives and school nurses are the building blocks of enduring partnerships. These relationships are crucial for disseminating EAA’s resources more broadly, allowing the Alliance to reach underserved communities and expand its training initiatives. Furthermore, networking with other health organizations and educational leaders at the conference creates opportunities for collaborative advocacy efforts. By joining forces, these entities can exert greater influence on policy-makers, advocating for state-level mandates for seizure first aid training, increased funding for school health services, and improved access to essential medical accommodations for students with epilepsy. These strengthened networks are fundamental to EAA’s strategic growth and its ability to effect widespread, systemic change.
Future Directions for Epilepsy Alliance America: Sustained Commitment
EAA’s success at NASN 2026 reinforces its strategic direction and commitment to school-based initiatives. Moving forward, the Alliance plans to leverage the insights gained from direct nurse feedback to refine its existing programs and develop new resources tailored to emerging needs. This includes expanding its online training modules, creating more specialized materials for different age groups and seizure types, and exploring innovative ways to reach school districts that may lack sufficient resources. EAA will also continue to prioritize its presence at key educational and health conferences, recognizing these platforms as vital for direct engagement and advocacy. The goal is to ensure that Epilepsy Alliance America remains at the forefront of epilepsy education and support, serving as a national leader in championing the rights and well-being of individuals with epilepsy, particularly within the crucial school setting.
Broader Impact on Public Health: Investing in Lifelong Well-being
The efforts undertaken at NASN 2026 contribute to a broader public health objective. By ensuring that students with epilepsy receive appropriate care and support during their school years, EAA is investing in their long-term health outcomes. Proper seizure management, reduced stigma, and an inclusive educational environment can lead to improved academic achievement, greater social integration, and enhanced mental health. These foundational experiences during childhood and adolescence profoundly impact an individual’s adult life, influencing their independence, employment opportunities, and overall quality of life. Epilepsy Alliance America’s work at the NASN conference is therefore not just about immediate safety; it’s about fostering lifelong well-being and ensuring that every student with epilepsy has the opportunity to reach their full potential, free from the unnecessary burdens of misunderstanding and inadequate support.
