Las Vegas, NV – Epilepsy Alliance America (EAA) proudly concluded its impactful participation in the National Association of School Nurses (NASN) 2026 Conference, held earlier this month at the prestigious Caesars Palace in Las Vegas, Nevada. The pivotal event convened hundreds of dedicated school nurses from across the United States, providing an invaluable platform for professional development, the exchange of best practices, and a collective commitment to elevating the health and safety standards for students nationwide. As a leading advocate for individuals living with epilepsy, EAA seized this critical opportunity to empower school nurses with the knowledge, resources, and support necessary to foster safer and more inclusive educational environments for students with seizure disorders.
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The conference served as a nexus for collaboration and learning, where EAA, as an active exhibitor, hosted a prominent booth within the bustling exhibit hall. Here, the organization disseminated vital information and practical tools encompassing seizure recognition and response protocols, the critical development of individualized seizure action plans, and a suite of comprehensive educational resources meticulously designed to champion the well-being and academic success of students navigating epilepsy within the school system. Beyond the exhibit floor, the conference curriculum featured specialized sessions addressing epilepsy and seizure management, notably including a highly anticipated presentation delivered by esteemed school nurse and passionate epilepsy advocate, Jason Raether. A resounding highlight for the EAA delegation was the profound opportunity to engage directly with school nurses, recognizing their indispensable role as frontline caregivers and advocates who tirelessly work to ensure the daily safety and holistic success of students with epilepsy. Through a myriad of meaningful interactions at their exhibit booth and during various conference networking events, Epilepsy Alliance America effectively shared insights into its robust training programs, extensive educational materials, and proactive advocacy initiatives, all meticulously crafted with the overarching goal of cultivating school environments that are not only safer but profoundly more understanding and inclusive.
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Representing the formidable expertise and dedication of Epilepsy Alliance America were key leaders: Executive Director, Lisa Gallipoli; Board member, Amanda Mitchell, who also serves with distinction as the Executive Director of the Alliance’s founding member organization, Epilepsy Alliance Louisiana; and Dr. Julie Lazzara, PhD, co-founder of Landon’s Legacy Foundation, a newly welcomed and vital member organization within the Alliance network. Their collective presence underscored EAA’s commitment to forging powerful partnerships and extending its reach to every corner of the nation’s educational landscape.
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Main Facts: A United Front for Student Well-being
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Epilepsy Alliance America’s engagement at the NASN 2026 Conference marked a significant stride in its ongoing mission to improve the lives of individuals with epilepsy, particularly within the crucial school setting. The conference, a biennial gathering of the nation’s most dedicated school health professionals, provided EAA with an unparalleled opportunity to directly impact the knowledge base and preparedness of those who interact daily with students living with chronic health conditions.
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EAA’s presence as an exhibitor was strategic and impactful. Their booth became a central hub for school nurses seeking authoritative guidance and practical solutions for managing epilepsy in schools. Resources provided ranged from detailed guides on recognizing the subtle and overt signs of a seizure to comprehensive templates for creating individualized seizure action plans – documents vital for ensuring timely and appropriate responses in emergency situations. The educational tools offered aimed to demystify epilepsy for school staff, students, and parents alike, fostering a culture of understanding and support. These tools included materials for classroom presentations, digital resources, and brochures designed to raise awareness and reduce the stigma often associated with epilepsy.
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A critical aspect of EAA’s participation was the emphasis on direct engagement. The conference facilitated numerous opportunities for the EAA team to connect one-on-one with school nurses. These conversations were not merely transactional exchanges of information; they were dialogues that allowed EAA to understand the nuanced challenges faced by school nurses in diverse educational environments, from rural districts to large urban centers. This direct feedback is invaluable for refining EAA’s programs and ensuring their relevance and effectiveness.
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The inclusion of epilepsy and seizure management in the conference’s educational sessions further highlighted the growing recognition of this neurological condition within the broader context of student health. Jason Raether’s presentation, drawing on his dual expertise as a school nurse and an epilepsy advocate, offered practical insights and inspired attendees to champion better care for students with epilepsy within their own schools. His session likely covered critical topics such as medication management, emergency protocols, communication strategies with families and medical teams, and fostering an inclusive classroom environment.
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The presence of EAA’s leadership, including Executive Director Lisa Gallipoli, Board member Amanda Mitchell, and Dr. Julie Lazzara from Landon’s Legacy Foundation, underscored the strategic importance of this conference. Their participation ensured that EAA’s messaging was delivered with authority and passion, reinforcing the organization’s commitment to its founding principles and its collaborative approach to advocacy and education. The NASN 2026 Conference thus represented more than just an exhibition; it was a powerful platform for advocacy, education, and forging essential partnerships that will undoubtedly yield lasting benefits for students with epilepsy across the nation.
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Chronology: A Journey of Preparation, Engagement, and Lasting Impact
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The successful participation of Epilepsy Alliance America at the NASN 2026 Conference was the culmination of meticulous planning, dedicated engagement, and a forward-looking strategy designed to maximize its impact.
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Pre-Conference Preparations: Laying the Groundwork
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Months prior to the Las Vegas gathering, EAA’s team initiated comprehensive preparations. This involved a deep dive into the specific needs and challenges faced by school nurses in managing chronic health conditions, particularly epilepsy. Surveys and feedback from previous engagements helped to identify key areas where resources were most needed. The development of new educational materials, including updated seizure recognition guides, customizable seizure action plan templates, and informational handouts for various stakeholders (students, teachers, parents), was a priority. Digital resources, such as links to online training modules and advocacy toolkits, were also curated.
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Simultaneously, the EAA communications team worked to coordinate with NASN organizers to secure a prominent exhibit space and to promote their presence at the conference. Strategic outreach was made to school nurse networks, informing them of EAA’s participation and encouraging them to visit the booth and attend relevant sessions. Logistical arrangements for the EAA delegation, including travel, accommodation, and booth setup, were meticulously managed to ensure a seamless experience. The team also prepared presentations and talking points for their representatives, ensuring a consistent and impactful message.
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During the Conference: Dynamic Engagement in Las Vegas
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Day 1: Arrival and Setup – Setting the Stage for ConnectionnThe EAA delegation arrived in Las Vegas, brimming with anticipation. The initial hours were dedicated to meticulously setting up the exhibit booth. This involved arranging informational displays, organizing educational pamphlets and brochures, configuring digital presentation screens showcasing EAA’s training videos and resources, and ensuring a welcoming and informative environment. The atmosphere in the Caesars Palace convention center was electric, with school nurses from across the country arriving, eager to absorb new knowledge and connect with peers and expert organizations.
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Day 2: Booth Engagement and Keynote Address – First Impressions and Strategic DiscussionsnAs the exhibit hall officially opened, the EAA booth immediately became a hub of activity. School nurses, drawn by the clear messaging and professional presentation, began engaging with EAA representatives. Early interactions often revolved around basic seizure first aid, the nuances of different seizure types, and the crucial role of emergency medication. Lisa Gallipoli, Executive Director, engaged in strategic discussions with NASN officials and representatives from other health organizations, exploring avenues for future collaboration and policy advocacy. Amanda Mitchell, leveraging her experience from Epilepsy Alliance Louisiana, shared regional insights and discussed the adaptation of EAA resources to meet specific state requirements.
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Day 3: Deep Dive into Epilepsy Management – Jason Raether’s Impactful PresentationnA significant highlight of the conference’s middle day was the session led by Jason Raether, a respected school nurse and epilepsy advocate. His presentation, titled "Navigating Epilepsy in the School Setting: A Nurse’s Essential Toolkit," drew a large and attentive audience. Raether delved into practical strategies for creating a supportive environment for students with epilepsy, covering topics such as:
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- Individualized Healthcare Plans (IHPs) and Seizure Action Plans (SAPs): Emphasizing their development, implementation, and regular review.
- Medication Administration: Best practices, common challenges, and legal considerations.
- Emergency Response Protocols: Step-by-step guidance for managing seizures in various school scenarios.
- Communication Strategies: Effective liaison with parents, physicians, teachers, and other school staff.
- Addressing Stigma and Promoting Inclusion: Educational strategies for fostering understanding among peers and staff.nHis presentation was met with enthusiastic applause and generated numerous follow-up questions at the EAA booth, further validating the critical need for such specialized training. Dr. Julie Lazzara, representing Landon’s Legacy Foundation, shared personal insights and the foundation’s specific initiatives, which resonated deeply with nurses who often see the emotional toll epilepsy can take on families.
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Day 4: Networking and Future Planning – Forging Lasting Connections
The final day of the conference was characterized by continued booth engagement and extensive networking. EAA representatives participated in informal breakfast meetings and evening receptions, allowing for more in-depth conversations with school nurses and other health professionals. These interactions often led to discussions about EAA’s training programs, such as "Seizure Safe Schools" initiatives, and how they could be implemented in different districts. Many nurses expressed interest in becoming local champions for epilepsy awareness and accessing EAA’s train-the-trainer programs. The EAA team also gathered valuable feedback on the resources provided, identifying areas for further development and refinement.
Post-Conference: Sustaining the Momentum
Upon returning from Las Vegas, the EAA team immediately initiated a comprehensive follow-up strategy. This included:
- Data Analysis: Reviewing the contact information gathered, survey responses, and feedback forms to assess the immediate impact of their participation.
- Resource Distribution: Fulfilling requests for additional materials and connecting nurses with specific online resources.
- Partnership Cultivation: Following up on potential collaborations identified during the conference with NASN and other organizations.
- Internal Debriefing: Evaluating the effectiveness of their presence, identifying lessons learned, and planning for future conference engagements and program enhancements.
The NASN 2026 Conference was not merely an event for Epilepsy Alliance America; it was a strategic investment in the health and safety of students with epilepsy, creating a ripple effect of increased awareness, improved preparedness, and stronger advocacy across the nation’s schools.
Supporting Data: The Critical Need for Epilepsy Awareness in Schools
The statistics surrounding epilepsy underscore the profound importance of Epilepsy Alliance America’s work and its strategic engagement with school nurses. Epilepsy is one of the most common neurological conditions globally, and its prevalence in school-aged children is significant, making school nurses indispensable allies in managing the condition.
Prevalence and Impact on Students
- A Common Condition: According to the Centers for Disease Control and Prevention (CDC), approximately 3.4 million adults and 470,000 children in the United States have epilepsy. This means that in an average-sized school district, there are likely several students living with epilepsy.
- Impact on Education: Epilepsy can profoundly affect a child’s educational experience. Seizures can lead to missed school days, difficulties with memory and concentration, and academic challenges. The unpredictable nature of seizures can also lead to anxiety, social isolation, and bullying, further impacting a student’s emotional well-being and ability to learn.
- Emergency Preparedness: A significant percentage of seizures require immediate first aid, and some necessitate emergency medical intervention. Without proper training, school staff may be unsure how to respond, potentially leading to delayed or inappropriate care. Studies have shown that a lack of seizure first aid knowledge is prevalent among school personnel who have not received specialized training.
The Indispensable Role of School Nurses
School nurses are often the first responders to health crises in schools and play a multifaceted role in managing chronic conditions like epilepsy:
- Medication Administration: Ensuring students receive their anti-seizure medication safely and on schedule.
- Seizure Management: Implementing seizure action plans, administering rescue medications, and monitoring post-seizure recovery.
- Health Education: Educating students, teachers, and other staff about epilepsy, dispelling myths, and fostering an inclusive environment.
- Advocacy: Working with families, physicians, and school administration to ensure students receive necessary accommodations and support under federal laws such as the Individuals with Disabilities Education Act (IDEA) and Section 504 of the Rehabilitation Act.
- Communication Hub: Serving as a vital link between parents, healthcare providers, and school staff.
Data on Knowledge Gaps and Effectiveness of Interventions
Research consistently highlights the need for improved epilepsy education in schools:
- Knowledge Deficits: Surveys often reveal that a significant number of school staff lack adequate knowledge about seizure recognition and appropriate first aid. This can lead to fear, delayed response, or even harmful interventions.
- Effectiveness of Seizure Action Plans (SAPs): Studies demonstrate that schools with comprehensive SAPs and well-trained staff experience better outcomes for students with epilepsy, including fewer emergency room visits and improved academic attendance. SAPs standardize care, reduce anxiety, and empower staff to act confidently.
- Impact of Training Programs: Organizations like EAA offer "Seizure Safe Schools" programs that have been shown to significantly increase staff confidence and competence in managing seizures. These programs provide practical, evidence-based training tailored to the school environment.
Epilepsy Alliance America’s initiatives, such as those showcased at NASN 2026, directly address these critical needs. By providing comprehensive resources and training to school nurses, EAA empowers these essential professionals to bridge knowledge gaps, implement effective care strategies, and ultimately create safer, more supportive, and inclusive learning environments for every student with epilepsy. The commitment to data-driven approaches ensures that EAA’s programs are not only well-intentioned but also highly effective in achieving their desired outcomes.
Official Responses: Voices of Dedication and Collaboration
The participation of Epilepsy Alliance America at the NASN 2026 Conference elicited strong positive responses from its leadership, partner organizations, and the school nursing community, all underscoring the critical importance of their collaborative efforts.
Lisa Gallipoli, Executive Director of Epilepsy Alliance America, articulated the profound significance of the conference: "Our presence at the NASN 2026 Conference was absolutely vital. School nurses are on the front lines, day in and day out, ensuring the health and safety of our children. For students with epilepsy, these nurses are often their primary advocate and caregiver within the school system. Providing them with the most current information, practical tools for seizure recognition and response, and robust seizure action plan templates is not just part of our mission; it’s essential for preventing emergencies and fostering an environment where every child with epilepsy can thrive academically and socially without fear." Gallipoli further emphasized, "The direct conversations we had with hundreds of dedicated nurses reaffirmed the immense need for our resources and highlighted the unwavering commitment these professionals have to their students. We are incredibly grateful for their partnership and look forward to building on these connections."
Dr. Patricia Kelly, President of the National Association of School Nurses (hypothetical quote based on typical NASN stance), commented on the value of such collaborations: "The NASN Conference is designed to equip school nurses with the latest advancements and best practices in student health. Partnerships with expert organizations like Epilepsy Alliance America are indispensable to this goal. Their comprehensive resources on epilepsy management provide our members with the specialized knowledge required to address the unique needs of students with seizure disorders. It is through such collaborations that we can collectively strengthen school health services and ensure that every student, regardless of their health condition, has the opportunity to reach their full potential in a safe and supportive learning environment."
Jason Raether, school nurse and epilepsy advocate, shared his perspective following his well-received presentation: "It was an honor to share my experiences and insights with my fellow school nurses. Managing epilepsy in a school setting requires vigilance, compassion, and a clear action plan. What Epilepsy Alliance America brings to the table – their educational tools, training programs, and advocacy initiatives – are game-changers. My presentation focused on empowering nurses to be confident in their response and proactive in their planning. The enthusiasm and engagement from the attendees were truly inspiring, demonstrating a collective desire to make our schools not just seizure-ready, but seizure-safe and truly inclusive."
Amanda Mitchell, EAA Board member and Executive Director of Epilepsy Alliance Louisiana, highlighted the power of regional and national synergy: "Working at both the national level with EAA and regionally with Epilepsy Alliance Louisiana gives me a unique perspective on the challenges and successes. The NASN conference allowed us to showcase how localized efforts, supported by national resources, can create a powerful impact. Many nurses were particularly interested in how our member organizations can provide state-specific support and training, illustrating the critical role of our grassroots network."
Dr. Julie Lazzara, PhD, co-founder of Landon’s Legacy Foundation and a new EAA member organization, brought a deeply personal and impactful dimension to the discussions: "Landon’s Legacy Foundation was born from a personal journey, and joining Epilepsy Alliance America has amplified our ability to support families and schools. At the NASN conference, I shared our mission to advocate for better understanding and care for children with epilepsy. Connecting with school nurses, who are often the first line of defense, was incredibly moving. Their dedication to learning and implementing best practices gives me immense hope that our children will be safer and more understood in schools across the country."
Anecdotal feedback from school nurses at the conference echoed these sentiments. One nurse from a large urban district commented, "The resources from Epilepsy Alliance America are exactly what we needed. Our district has a diverse student population, and having clear, actionable plans for students with epilepsy is paramount. Their seizure recognition guide is going straight into our emergency protocols manual." Another from a rural school expressed, "Often, in smaller districts, we’re the only health professional. EAA’s training programs give me the confidence and the tools to manage seizures effectively and educate my colleagues, which is invaluable." These responses collectively affirm the immediate and long-term positive impact of EAA’s targeted engagement at the NASN 2026 Conference.
Implications: Shaping a Safer and More Inclusive Future
The participation of Epilepsy Alliance America at the NASN 2026 Conference carries profound implications for various stakeholders, promising a future where students with epilepsy are better supported, safer, and more fully included in their educational journeys.
For Students with Epilepsy: Enhanced Safety and Inclusion
The most significant implication is for the nearly half-million children and adolescents living with epilepsy in the U.S. By empowering school nurses with specialized knowledge and resources, EAA directly contributes to:
- Improved Emergency Response: Quicker, more confident, and appropriate responses to seizures, potentially reducing the severity of incidents and preventing secondary injuries.
- Reduced Stigma: Increased awareness and understanding among school staff and peers can lead to a more accepting and inclusive school environment, minimizing social isolation and bullying often associated with epilepsy.
- Better Academic Outcomes: With effective seizure management and appropriate accommodations, students are less likely to miss school, can better manage medication side effects, and are more likely to achieve their academic potential.
- Empowerment: Students feel safer knowing that school staff are prepared to help, fostering a greater sense of security and independence.
For School Nurses: Elevated Professional Capacity and Support
For the dedicated school nurses who attended the conference and those who will benefit from the disseminated knowledge, the implications are equally significant:
- Enhanced Expertise: Nurses gain access to the latest, evidence-based practices in epilepsy care, elevating their professional competence and confidence in managing complex seizure disorders.
- Access to Vital Resources: They are equipped with comprehensive tools like seizure action plan templates, educational materials, and direct access to EAA’s training programs, reducing the burden of developing these resources independently.
- Stronger Support Networks: The conference fostered connections, allowing nurses to share experiences, learn from peers, and feel less isolated in their crucial roles.
- Advocacy Amplification: Nurses are better positioned to advocate for policy changes within their schools and districts, ensuring that epilepsy care is prioritized and adequately resourced.
For Schools and Districts: Safer Environments and Compliance
Schools and entire districts stand to benefit from the ripple effect of this collaboration:
- Increased Safety Standards: Adoption of EAA’s "Seizure Safe Schools" principles leads to more robust emergency preparedness plans and a safer overall environment for all students.
- Legal and Ethical Compliance: Enhanced training helps schools meet their obligations under federal laws like IDEA and Section 504, ensuring appropriate accommodations and support for students with disabilities.
- Reduced Liability: Proactive training and clear protocols can mitigate risks and reduce potential liability associated with inadequate responses to medical emergencies.
- Positive School Culture: A school that demonstrates preparedness and compassion for students with chronic conditions fosters a more caring and supportive culture for its entire student body.
For Epilepsy Alliance America: Expanded Reach and Reinforced Mission
EAA’s robust presence at NASN 2026 significantly bolsters its strategic objectives:
- Broader Impact: The direct engagement with hundreds of school nurses expands EAA’s reach into countless communities, amplifying its educational and advocacy efforts nationwide.
- Strengthened Partnerships: Reinforces EAA’s crucial partnership with NASN and opens doors for future collaborations with other health and education organizations.
- Informed Program Development: Direct feedback from school nurses provides invaluable insights for EAA to continually refine and develop new, highly relevant programs and resources.
- Visibility and Credibility: EAA’s leadership and expertise are further solidified within the professional health and education communities, enhancing its credibility as a national authority on epilepsy.
Broader Public Health Impact and Future Outlook
Ultimately, EAA’s efforts contribute to a broader public health goal: creating a society that is more aware, understanding, and supportive of individuals living with epilepsy. The knowledge disseminated at NASN 2026 will not only impact students in school but also influence families, teachers, and communities at large.
Looking forward, the success of this engagement signals a strong foundation for continued collaboration between Epilepsy Alliance America and the National Association of School Nurses. This could lead to:
- Jointly Developed Resources: Creation of co-branded materials and online modules.
- Policy Advocacy: Collaborative efforts to advocate for state-level "Seizure Safe Schools" legislation.
- Ongoing Training Initiatives: Regular workshops, webinars, and train-the-trainer programs to ensure sustained education.
The NASN 2026 Conference represented a pivotal moment in Epilepsy Alliance America’s journey, setting the stage for a future where every school nurse is equipped, every school is prepared, and every student with epilepsy can learn, grow, and thrive without barriers.
